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Huntington’s Disease

We provide personalised support to enable the best possible quality of life for those living with Huntington's Disease.

Gardening

Huntington’s Disease

Drawing on the support and advice of our dedicated psychiatric team, our specialist nurses focus on managing the symptoms of Huntington’s disease to minimise distress, maximise function and enhance the quality of life.

It all starts with an individual assessment, before co-creating a bespoke care plan, with the individual and their family or support circle at the heart of every decision.

Our specialist care is enriched and enhanced through a range of meaningful activities that make life more fulfilling and rewarding. From social activities to hobbies, everything we do considers the attention span and potential fatigue of individuals, placing choice and control firmly in their hands.

We're proud to say that in 2019 our Fairburn Mews home became the first care home in England to be quality assured by the Huntington's Disease Association. This is a testament to the care and support provided to residents and families by the team. 

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Valerie came to Exemplar Health Care with very challenging behaviour and severe self-neglect. In addition to Huntington’s disease, Valerie was severely underweight, had underlying mental health needs. Encouraged to expand her surroundings, she began spending time in the garden and leaving the home for visits. Valerie is now enjoying a true quality of life.

Read Valerie's story

Support Worker

From changes in mood through to lack of drive, difficulties with speech or swallowing and involuntary movements, we pride ourselves on a unique understanding of the symptoms of this complex condition, and we devote ourselves to reducing the impact on people’s lives.

Communication difficulties are overcome with support from community speech and language therapists, with assistive technologies and equipment for managing communication, safety and comfort. Special care is given to food, with high calorie diets used to prevent weight loss and modified diets developed to reduce the risks associated with swallowing.

As the condition progresses, so does our level of care. Nursing teams are flexible with their approach, adapting their skills and experience to suit specific situations and needs.

We work closely with the Huntington’s Disease Association to ensure we’re providing the highest standards of care.