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Raising Awareness of Huntington’s Disease.
On 27th November 2015, Thames House nursing home in Rochdale held an auction evening at the Flying Horse Hotel to raise money and awareness for the Huntington’s Disease Association.
After months of planning, with items donated from well-known football and rugby clubs, (Wigan Warriors, Bolton Wanderers, Manchester United F. C., Manchester City F. C., Liverpool F. C., Celtic F. C., A. J. Bell Stadium, St Helen’s Rugby Club), Swarski, Beaverbrooks, as well as contributions from staff and relatives that included a coffee morning organised by one of the relatives, the auction took place, raising a whopping £2100 for the H.D.A.
About Huntington’s Disease.
HD is a devastating neurodegenerative disease. It is hereditary, with each child of an affected parent at 50% risk of inheriting the faulty gene. The duration of the disease and life expectancy varies between 10 and 20 years, and the age of onset is typically between 30 and 45, and currently there is no cure/ It is a shattering illness that affects generations of families. The individual will experience a mental decline, coupled with involuntary movements that can become quite severe. As the disease progresses, movement, balance and coordination are affected and a deterioration in muscles leads to difficulties in chewing, swallowing food and dangerous weight loss. An individual’s cognitive ability worsens leading to dementia. It is a challenging terminal illness that requires specialist care and support as the disease is so complex.
About the Huntington’s Disease Association
The HDA was established in 1971 as a specialist service to help people and families seriously affected by Huntington’s Disease. We are a national charity, raising awareness of H. D. with the general public and allied health and social care professionals.
About Thames Health Care Ltd
Thames House, part of the Exemplar Health Care Group, is a purpose-built, 20-bedded, modern care facility providing nursing care for adults with a diagnosis of Huntington’s Disease, Motor Neurone Disease, Multiple Sclerosis and Acquired Brain Injury.